Thursday, July 1, 2010

Healing Nerve and Muscular Atrophy: Resources, Therapies, Strategies

My Prayer:

Hi friend,

Thank you for your help in realizing a dream and renewing a life. Please share any resources you have with healing nerve and muscular atrophy, specifically, severe axillery nerve damage and deltoid atrophy (left axillery nerve damage and C5/C6 spinal comprehension lead to inability to feel, move, or control the left deltoid muscle, which lead to complete muscle atrophy). If there are any doctors, therapies, exercises, books, websites, products, or stories that have helped people heal, please let me know! I am willing to do whatever it takes to heal my body and my spirit.

I know people have healed from moderate nerve and muscular atrophy. There also has to be way to heal from this level of severe, almost complete, nerve and muscular atrophy. If lizards can grow their entire tail back, if babies can be created from just a few single cells…then I can heal this. I must!

I have struggled for over 4 years, over hundreds of doctors, and over thousands of websites, books, and dollars to heal this. There were times where I almost gave up and quit—with the body, with the pain, with the life. Some days, I think, for the briefest and the longest of moments, that I would rather kill myself than watch everything I worked for, fought for, lived for, die before my eyes.

I couldn’t stand feeling so helpless and hopeless, so humiliated and disfigured, so depressed and desperate. I wouldn’t want a life without my dreams—being an Olympic athlete, professional fighter, fitness competitor, world class personal trainer, and health entrepreneur. Yet, I know that even the best laid schemes of mice and men come undone. Maybe I can’t overcome this situation right now, but I can decide how I face it, how I embrace it, how I live with it, from it, through it.

Get busy living or get busy dying…

Current Treatment Options:

I am currently doing Qi Qong, Tai Chi, and chiropractic to heal the body. I have experienced acupuncturists, physical therapists, and scores of other therapies in the past. The case is so rare and severe that it is vital to have someone who has the experience, expertise, and energy to actually heal it. I need proven results on nerve and muscle healing.

I will do whatever it takes to heal my nerve and muscle completely. Anything that may help the nerve and the muscle heal and grow—testosterone boosting supplements, growth hormone stimulants, or energy enhancing herbs—is great. I never wanted to do steroids or HGH in the past, because I wanted to test how far I could go on my own. I am also afraid of the potential side effects of any drugs or treatments.

Yet, at this point, I would rather risk taking steroids and HGH than live the rest of my life without a functioning shoulder and body. I still need to find a doctor who can prescribe those drugs who actually has experience in healing axillery nerve and deltoid atrophy.

If I can find someone who has actually succeeded with that type of treatment, or any type of treatment, I will do it! Please let me know if you know anyone, especially if they are located around the Bay Area (San Jose). Please feel free to forward this to anyone else who may know anyone who can help. I know someone, somewhere, somehow, must have overcome this in this lifetime.

With my highest hope and deepest appreciation,

Andrew

Background:

All my life, I wanted to be a professional fighter, power lifter, and fitness competitor. In 2006, I got close to my dreams at 20 years old.











In April 2006, I got a severe left shoulder dislocation from flipping over the air during a wrestling takedown at the finals of a grappling tournament. The violent fall and shoulder dislocation led to axillery nerve damage, torn labrum, and twisted spine. I watched helplessly as my left shoulder atrophied into just skin and bone. I lost over 70 pounds of muscle, and my testosterone levels dropped from high 1200s ng/dl (highest levels of alpha males in their prime) all the way down to low 300s ng/dl (the average levels of 60 year old males).






















I went to over 40 doctors in just 1 year, desperately searching and striving for a solution. I saw top neurosurgeons, orthopedics, acupuncturist, chiropractors, physical therapists, and anything and everything I could find.

The injury got so severe that I even experienced phantom limb in my left shoulder from September 2006 until February 2007. My shoulder was completely numb. When I touched my right cheek, right calf, and left arm, I could feel slight sensation in the left shoulder. This was due to the changes in the brain’s primary somatosensory cortex to compensate for the damaged axillery nerve. In February 2007, I began to recover slight sensation after the shoulder rapidly fired by itself for 15 seconds for the first time since the injury. About once a week to once a month, I would get electric shocks in my brain and shoulder.

From September 2006 to September 2007, I continued to work out, doing the shoulder rehabilitation exercises as much as I could and lifting as much as I could. I thought I was helping my body heal, but, I was actually damaging it since the shoulder could not even lift itself. Thus, I was compensating the muscle and twisting my entire body up into a knot. I was still benching 250 pounds, even though my shoulder did not even work anymore.

Healing in 2007-2008:

In June 2007, the neurosurgeon told me the only actionable option was a neural grafting, where they took a nerve from my triceps and insert it into my shoulder nerve. However, they were not sure if the shoulder would even take the new nerve, and, it could end up making my shoulder and my arm even worse. I knew there had to be another way.

In August 2007, I met Dr. Michael Molter at Tony Robbin’s UPW. He realized that my entire neck, spine, ribcage, pelvis, and legs have been twisted out of place due to the immense compensation that my entire body had to go through to deal with the traumatic shoulder injury. The general spinal compression, along with the local axillery nerve damage, was responsible for the neuromuscular dysfunction, disorder, and depression. He realigned my entire body and retrained my nervous system to feel, move, and heal. I had to relearn how to sit, walk, run, work, and even sleep.

In September 2007, I met Master Zhao, a Chinese Qi Qong Master. With Master Zhao’s and Dr. Molter’s energy healing, my axillery nerves came to life for the first time in over 1.5 years. I felt amazing sensations from his Qi, from experiences of a thousand acupuncture needles in my nerves to feelings of a giant, inflating ball in my shoulder; from melting lava in my bones to lighting in my mind; from blue and gold waves in my Dan Tian to an astral, spirit essence beyond my body.

From September 2007 to September 2008, I stopped lifting weights to allow my body to realign and recover in its new posture. During this entire year, I had to fly back and forth from San Diego to San Jose every 2-3 weeks to see these two life-saving doctors as I finished my senior year in college.











Healing in 2009-2010:

By January 2009, my body was finally stable and pain free after 3 years of complete dysfunction. In April 2009, I met Dr. Seth in his Qi Qong class. My shoulder was still so weak that it couldn’t even lift itself up, much less do any of the gentle Qi Qong or physical rehabilitation exercises. No one in recorded medical history has ever healed completely from that level of nerve and muscular atrophy before, much less go on to compete professionally or break world records or be a health guru. There is a rare, reticent pain in not being able to share your experience with anyone, because no one can ever understand what it is like, much less how to help.

I prayed, meditated, and visualized myself healing, lifting, and training as I lied in bed with my motionless shoulder. I couldn’t find any story of anyone who had healed from the same conditions I had, but I could find stories of paralyzed people who walked again, blind people who saw again, and dead people who lived again.

I began to see that there may be times in life when we can’t even move forward or get up anymore. There are tempestuous tides where the best we can do—the only thing we can do—is just sit still and hold on and breathe in. And it takes every breath we have to just breathe, because we are drowning, sinking, waning every moment. Maybe these battles aren’t about fighting, pushing, and conquering. Maybe they are about accepting, relaxing, and surrendering...Surrendering without giving in…And without giving up.

I began Dr. Seth Qi Qong class again in October 2009, and was finally able to do some of the simplest movements that engaged the shoulder and linked the entire body. It was the first time I could activate my shoulder in any physical exercises in over 4 years. The shoulder made dramatic progress from October 2009 to February 2010. I put everything I had into healing my body. Without health, there is nothing. I knew I could not afford to live the rest of my life as a cripple or invalid. There is so much I want to do in this life, and I need all the energy, vitality, and functionality I could have from my body.











I saw that faintest glimpse of light, of hope, for those few months. Then, the darkness came again.

In April 2010, the shoulder reached an impasse that became a plateau. It even seemed to shrink and weaken. I had always thought I would be healed in 3 months, then 6 months, then 1 year, then 2 years, then 3 years…Now, it had been over 4 years, and I was still not healed. I was fighting to just function, to just move, to just live. I had been functioning at 1%-10% of my physical performance for over 4 years now. There were few moments, days, and even weeks where I almost gave up. For almost 3 months after April 2010, I thought of suicide every single day.

What hurt the most wasn’t the lost of dreams, of loves, or even of identity. It wasn’t even the physical, mental, or emotional challenges. It was not being able to go backward or move forward.

Every day, I stared at the abyss, and the abyss stared back at me.

I could train my body to bench 300 pounds and to leg press 1000 pounds, yet I could not even do one single shoulder raise, one real barbell squat, or one full military press. No matter how strong or how fit the rest of my body got, my shoulder and my spine kept holding me back. I couldn’t see the point of forming and reforming a temple that just fell and fell again. I had no stomach for this Sisyphean challenge, no strength to push this rock up, and no sanity to see it roll down, over, and over, and over again. There was no atonement for this abandonment, no maceration for this madness, no vindication for this violation.

It wasn’t so much the physical weakness that distressed me; it was how it affected the rest of my life. Due to the nature of the severe atrophy, it felt like I had a 2 ton weight on my shoulder every moment I worked to heal it. It didn’t matter if I focused on it or ignored it, the shoulder, the nerve, the body, drained all of me…

Healing the body took everything I had that I had nothing left to do anything else—I didn’t have the focus to write; I didn’t have the energy to work; I didn’t have the strength to speak. Yet, if I didn’t heal my body, nothing else would matter.

I didn’t have the power to embody everything, or even anything, that I once taught: purpose and passion, productivity and positivity, growing and contributing. I could not heal my body, I could not pay my medical bills, I could not go outside my room, because I was afraid of having to talk to anyone about myself, because I couldn’t bear to face the life I wasn’t living. I was not even supporting myself, much less changing the world, much less doing anything I was put here for. I used to do life coaching, personal training, marketing, writing, speaking, traveling, and competing, all in just one day. Now, I could barely do just one of them in an entire month.

I felt like the entire Universe was mocking me, “Look how strong and fit you can still get, even with an entire shoulder and arm missing! Too bad that one body part never gets better, and, that one bad part will continue to cripple all your good parts, so you have to fight constantly and consistently to just be mediocre! All your hard work is for nothing. You can never do what you wanted to do or be who you were meant to be. At 24, you are already a has-been, and, to the rest of the world, a never-was! You’ll always look like a freak, a cripple, a Quasimodos, and, the harder you work out, the worse you will get! You won’t ever feel as great as you felt when you were 18! You won’t ever be a hero, a champion, a star again! You’ll never have the position, the connection, or the consummation to build your health centers, products, or programs! You worked all your life for a dream, and you have nothing to show for it except a crippled body, a tortured heart, an injured mind. You put all your eggs in one basket, and I just stepped and shitted all over it!”

Sometimes, I thought about how much I had lost and how little the shoulder had improved, and I felt like death. I just couldn’t see the point of working so hard for so long if it would never get better. I hated qi qong, the doctors, the therapists, the people, and the world who made me feel hope again and again, only to have it crushed again, and again, and again.

I couldn’t justify spending all my resources, time, energy, work, and money in healing my body if it wasn’t even healing! If I can’t heal from this, then what’s the point of my entire life? What good is an incomplete miracle, an unfinished race, an unsung song?

Back then, I could set world records, I could transform lives, I was asked to be on news and shows. Now, I couldn’t even get through a single day without pain, debilitating pain. Back then, I could change anything in my life—the abused childhood, the troubled relationships, the life opportunities. Back then, I could conquer anything—the mind, the body, the spirit. Now, I couldn’t even control my life, much less choose it. And the worst part of it all is I never even got to finish taking my shot! I spent 20 years to open those doors, and I didn’t even get to walk through it before the entire building shattered into pieces—parts that I can’t put back together, patches I can’t find, pictures I can’t see.

Back then, there was finally something—everything—out of the nothing that had been my whole life. Now, there was nothing.

I felt like everything I was doing to heal my body were mere life support, to just keep me alive. Was it worth fighting so hard to just be able to live, without something to live for?

The only thing that had kept me going was the faith that I would heal, that I would be complete. Because then, I could tell people the story of the boy who was beat down, given up, and walked over his whole life until he found salvation in martial arts, psychology, and philosophy. The teenager who went after his dreams and set world records, even though no one believed it was possible. The young man who got injured and everyone told him to just give up and move on his life as a cripple. The man who became the first scientifically documented person to heal completely from severe nerve and muscular damage, and, with that wisdom from experience, he integrates the best of the West and East, Yin and Yang, Old and New, to create the best programs, products, and principles for all mankind, so everyone can live well. The world needs a story like that. I needed a story like that…

Peace:


I don’t know how this story will end. And I can’t control what this is.

I don’t know if I will heal completely. I don’t know if I can compete
professionally. I don’t know if I will win Olympianly.

But I do know why I began. And I can choose how I live, what I do, and who I am.

14 comments:

  1. Have you tried using ursolic acid supplements? In July 2011 experimental results were published showing that ursolic acid may help with muscle atrophy caused by nerve damage.

    I have been taking Holy Basil extract since that time to help with 3/5 deltoid atrophy that was caused by C5 nerve compression. My atrophy developed over many years of neglect and incompetent medical advise, however. Doing headstands while twisting did not help.

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    1. Can i know how was your condition now? Was the atrophy getting better?

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  2. I know all these feelings, I wish i could face them as half the man you are

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  3. Sad story but we have to just keep at it.

    I had auxiliary nerve damage in a motorbike accident back in 2014

    I'm sure if it's been severed you need to have nerve grafting surgery but if it hadn't been completely severed they can heal on there own (3 years and mine is about at 70%) my anterior deltoid has affected the most but it is slowly coming back on its own my military patch was all numb and jelly for about 8 months since the injury, I started recovery exercises as soon as possible (rotary cuff, front raises, over head exercise and pull backs etc).

    I feel it will come back on its own but only time will tell as they heal 1mm a month from memory so it is a very long process and again depends how badly it was damage in the accident.

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  4. I know how u feel. I dont know if your atrophy is worse than mine but i understand the frustration of trying to regrow your muscles. I won't lie, if this is the case , then i can definitely relate because I too began noticing the signs of atrophy at age 18. The age where i was a guy just about to enter the world of adult hood and finally becoming free and autonomous. Im 22 now and believe me these past 3 or 4 years have been hell. Im still alive but i have to wonder if this strange weight loss causing my wasting , i wonder if it'll cut my life shorter than the average life span. Anyways it sucks because I have always struggled with my own adversities and dealing with the atrophy which is suspect is cachexia but i can't say for certain as I irresponsibly never actually diagnosed myself especially as i make little cash. Living with this malaise and chronic fatigue like symptoms is exasperating and Fucken annoying . living like this is hell. Im still alive but fuck its hard to make my body look toned and normal and fatter with a body that constantly loses mass and actually causes me pulsating neuralgic like feelings in my overworked body parts specifically only when i work physically strenuously. Ugh my arms and legs do look atrophied and i still dont have my answer so im hoping this weight gain (protein) will help me. I was a social reject in high school secretly, when i finally graduated from high school . i was supposed to live my life more confidently and more importantly FREE without burden in more ways than one.dammit this ordeal has caused me to regress back to living a solitary life confined in my room for fear of being hurt by the outside world once more. Look at us ,its proof because our vocabulary is pretty good and the way u write your paragraphs also means you are a smart guy. Why is this important. Well one could argue that our vocabulary is completely irrelevant and true it is if it weren't foe the fact that our despair molded us into the individuals we are today. I don't want to be an astronaut or mathematician , i simply wanted to be likw the resr of the world and have fun and finally smile with people, but this stupid malaise feeling has ruined my life and i want it to STOP!!$ i fucken had enough of this anguish.

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  5. fuck, this is brutal shit. hey?
    thanks for your words, gave me some happiness in a weird way. good luck brother im fighting alongside you and know just how you feel.

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  6. I just hate these nerve palsies. I got one in 2013 in my long thoracic nerve which led to compensations issues by screwing my pec minor and anterior delts. Now my entire right side posterior chain of muscles starting from rotator cuff, serratus anterior and lower traps is badly atrophied and no matter how hard I try and focus it never shows more than 70% improvement which diminishes rapidly if I give a few days exercise break. The pec minor has become hard like a stone and no amount of stretches help it stay normal. Constant burning pain between my shoulder blades which hurts like poking needles sometimes won't let me drive, sleep and work. My IT/software career has suffered let alone my bodybuilding aspirations. I have been feeling terrible since 2013 when it all started. Not sure if this crippling scapular dyskinesis would ever heal. I wish it would in a couple of magical months but I have been wishing for these magical months since 2013.

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  7. Way back in 1986 I tore my axillary nerve after making a rugby tackle.almost immediately atrophy of the shoulder set in. range of motion was pretty good and other muscles biceps and pecs did a lot of compensation. Regimental patch lasted for at least 10 years and the patch was always visibly noticable after running and exercising. I was unable to compete in rugby at any high level again. Muscle imbalances and lack of size meant injuries would put an end to my sport. I have competed in most other sports to a reasonable level, swimming, running, touch football, surfing without problems. To this day i have no front deltoid and no teres. The last few years i think the lateral/side deltoid has actually improved. A few years ago i tore my pec muscle while water skiing. The surgeon was shocked when he saw the rest of the shoulder and pec surgury was not an option because there was nothing to tie it into. so yeah its a permanent injury that is mostly seen by me, unless i tell others they dont notice. I can and have lived a healthy active life.

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  8. Man, I am dealing with the exact same injury. Severe dislocation of my left arm due to a 4 wheeler accident in 2006. I have been trying since then to grow this left deltoid. I have seen some success through weight lifting and daily exercise but it’s still way smaller, weaker and less range of motion than my right side. Have you made any progress? I will take any advice.

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  9. what happened to you now? did it heal? can we contact you in any way? i would like to know if everything worked out for you.

    i am in the same boat i have axillary and long thoracic nerve damage from a chiropractor who was fixing my bulging discs. he damaged my long thoracic nerve and with time my axillary nerve got damaged too. its been more than 4 years of hell for me

    how to contact you?

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    1. Yo dude, I also have had 4 years of axillary nerve damage and come back every now and then to check up to see if this guy has updated the post.

      How's things with you? I've had MRI's, CT scans etc and only EMGs show nerve damage. I have an interesting case because I have complete range of motion, but I have deltoid atrophy and pain all the time.

      Delete
    2. hey man i am also checking this forums occasionally to find a remedy.

      i also have full range of motion and i can lift normally. but the winging scapula and my shoulder atrophy is driving me crazy. i also have constant headaches.

      i have recently one and mri and my doctor told me i have a herniated c5 c6 disc that is why i have atrophy. but i am sure it is not the reason because the chiropractor i went to is the reason why i have this atrophy i am sure of it!

      right after his last session my shoulder popped and it immediatly atrophied.

      i am taking b12 vitamins everyday but to no avail. it seems like i just have to live with pain and discomfort all my life and i am only 25.

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  10. Any news on your situation right now? i hope you recovered. i am dealing with the same injury and would love help because i think i am becoming suicidal

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